Chapter 7 - The Storm Inside

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The infusion took less than twenty minutes, but it felt like an eternity.
A small syringe containing twenty milliliters of clear, straw-colored liquid was attached to Lily’s central line. Inside that liquid were millions of engineered T-cells—her own microscopic soldiers, re-trained to seek and destroy the cancer invading her body.
Dr. Vance pushed the plunger slowly. Lily sat propped up on pillows, eating a blue popsicle, blissfully unaware of the microscopic battle about to take place inside her bloodstream.
Tony stood on her left, holding her small hand. I stood on her right, brushing a strand of hair from her forehead. Robert sat in a chair near the corner of the room, his hands clasped over his cane, praying silently.
"Now we wait," Dr. Vance said as she detached the empty syringe. "The cells will take about twelve to twenty-four hours to multiply and locate the target. When they do, the immune response will be severe. Be prepared."
The storm hit at midnight.
It started with a sudden, violent shiver. Lily began to shake so hard the bed frame rattled. Tony instantly sat up from his chair, grabbing her shoulders.
"Mommy... I'm cold," Lily gasped, her teeth chattering loudly. "I'm so cold!"
I piled three more heavy blankets over her, but the shaking only intensified. Her monitor began to beep in sharp, panicked intervals.
Heart Rate: 145. Temperature: 102.4°F.
Dr. Vance and two ICU nurses burst through the door.
"Cytokine release syndrome is kicking in," Dr. Vance announced crisply, her voice calm but authoritative. "Push 500 milligrams of acetaminophen IV. Start a cooling blanket. Get an arterial line ready."
Within an hour, Lily’s temperature spiked to 105.1°F. Her skin was burning hot to the touch, her cheeks flushed a deep, unhealthy red. She was thrashing on the bed, caught in the grip of a terrifying fever hallucination.
"Dad! Dad, hold the surfboard!" she cried out, her eyes wide and unseeing, staring at the ceiling. "The waves are too big! Dad!"
Tony leaned over her, tears streaming down his face, holding her thrashing arms. "I'm here, baby! Dad's right here! I'm holding you!"
"Not you!" Lily screamed in her delirium, her small body convulsing. "The other Dad! He's in the water! He's drowning!"
The words hit the room like a physical blow. Tony flinched as if he had been slapped, his face turning pale. He dropped his head onto the mattress beside her arm, sobbing silently.
Robert stood up from his chair in the corner, his knuckles white on his cane. He took a hesitant step toward the bed, looking utterly tormented.
"Lily, sweetie," I cried, holding a ice pack to her burning forehead. "Listen to Mommy! You're in the hospital! You're safe!"
"Blood pressure is dropping," a nurse shouted over the blaring alarms. "80 over 40. She's going into shock!"
"Push tocilizumab immediately!" Dr. Vance ordered, her hands moving rapidly over the IV ports. "We need to damp down the cytokine storm before her organs fail! Get the crash cart on standby!"
The room dissolved into a nightmare of flashing lights, medical orders, and shouting staff. Tony and I were pushed back toward the wall as four nurses surrounded the bed.
Lily’s eyes rolled back in her head, her chest heaving violently as she gasped for air.
"She's stopping breathing!" a nurse called out. "Bag her!"
A plastic mask was shoved over Lily’s nose and mouth, a nurse rhythmically squeezing the blue resuscitation bag. Squeeze... release... squeeze... release.
I covered my mouth, screaming silently into my hands. Tony grabbed me, pulling my face into his chest, wrapping his strong arms around me as we both sobbed hysterically.
From the corner of the room, Robert dropped his cane. He didn't care about his own failing body anymore. He stumbled forward, reaching past the nurses, grabbing Lily’s small, burning foot through the blankets.
"Don't you dare take her!" Robert roared at the ceiling, his voice booming with a terrifying, ancient rage. "Take me, God! Take me! I'm the one who lived a bad life! Take me and leave this child alone!"
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The monitors shrieked a continuous, flatline warning tone.
"No pulse!" Dr. Vance shouted. "Starting CPR!"